La comunicazione come aspetto trasversale della relazione con il paziente: rene e lavoro nel futuro dell’adulto?

22 Giugno 2013 – Presso AOU A. Meyer Aula Magna (2° piano) Viale Gaetano Pieraccini, 24. Questa giornata fa parte di una serie di momenti di riflessione rivolti ad analizzare alcuni bisogni assistenziali dell’adulto con Fibrosi cistica nei risvolti sia clinici che informativi e comunicativi.

 

Abbiamo affrontato i temi della fertilità nel maschio e nella femmina, della gravidanza e del trapianto.

Abbiamo sempre avuto la consapevolezza che l’informare ed il comunicare rappresentino una parte essenziale del bagaglio professionale degli operatori sanitari.

Ci proponiamo di affrontare in questo incontro un aspetto clinico ancora piuttosto “oscuro”, come il danno renale: vi è incertezza sulle modalità del monitoraggio di funzione, mentre farmaci, diabete e malattia polmonare lo insidiano.

Ma oggi il rene diventa spesso protagonista degli esiti a distanza del trapianto polmonare.

Parleremo anche di un altro tema poco esaminato e trattato dagli operatori sanitari: il counselling per l’attività lavorativa. Questa resta una sfera di scelte personali o fa i conti anche con i limiti ed i rischi che la malattia impone?

Come dobbiamo parlare perciò di lavoro ai soggetti adolescenti ed adulti con Fibrosi cistica? Questa giornata ha lo scopo di offrire all’operatore sanitario del Centro per la Fibrosi Cistica un momento di riflessione multidisciplinare e multiprofessionale su questi due temi diversi ma rilevanti per il futuro dell’adulto con Fibrosi cistica.

 

RELATORI

Dario Bartolozzi, Responsabile S.O.D. Malattie Infettive, A.O.U. Careggi, Firenze

Franco Berti, Presidente Lega Italiana Fibrosi Cistica Onlus

Cesare Braggion, Direttore del Centro Regionale Toscano di Riferimento per la Fibrosi Cistica, A.O.U. Meyer, Firenze

Silvia Bresci, U.O. Malattie Infettive, A.O.U Careggi, Firenze

Leonardo Caroti, S.O.D. Nefrologia, Dialisi e Medicina dei Trapianti, A.O.U Careggi, Firenze

Paola Catastini, Psicologa Clinica e Psicoterapeuta, A.O.U. Meyer, Firenze

Vanessa Cori, Assistente Sociale, Lega Italiana Fibrosi Cistica Onlus, Roma

Elisa Fantoni, S.O.D. Malattie Infettive, A.O.U Careggi, Firenze

Lorenzo Lenzi, Centro Regionale Diabetologia Pediatrica, A.O.U. Meyer, Firenze

Valerio Alessandro Palminteri, Specialista in Medicina Fisica e Riabilitazione, Responsabile consulenza medico-legale, Lega Italiana Fibrosi Cistica Onlus, Livorno

Enrico Minetti, Direttore S.O.D. Nefrologia e Nefrologia dei Trapianti, A.O.U Careggi, Firenze

Carlo Raffaelli, Esperto in Comunicazione, Pisa

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