Workshop: L’assistenza per la Fibrosi cistica in Toscana

24 Gennaio 2014. Aula Magna AOU Meyer, Firenze. Il Workshop, organizzato con la Lega Italiana Fibrosi Cistica – Toscana Onlus, ha la finalità di fare il punto sull’assistenza in regione: il focus sarà sulle misure di esito principali, sulle attività e su alcuni temi assistenziali che riguardano sia la realtà pediatrica che quella degli adulti.

Le presentazioni hanno lo scopo di mettere in risalto i punti di forza e di debolezza nell’organizzazione del Centro Regionale e dei Servizi di Supporto, per poter prevedere e pianificare i miglioramenti da introdurre nei prossimi mesi. Per questo scopo sarà rilevante il contributo nella discussione dei pazienti e dei loro familiari.

 

10.00 – 10.30 Iscrizioni e saluti

1° Sessione: moderano M.C. Cavicchi e F. Berti

10.30 – 11.00 Il Report 2013 del CRR e il flusso informativo e comunicativo tra utente e Centro – C. Braggion

11.00 – 11.30 La casistica e l’esperienza assistenziale del SS di Livorno – A. Negri

11.30 – 12.00 La casistica e l’esperienza assistenziale del SS di Grosseto – M. Bernardi

12.00 – 12.30 Il bambino e le sue prime domande sulla malattia – C. Teodori

12.30 – 13.10 Discussione

13.10 – 14.00 Pranzo

2° Sessione: moderano A. S. Neri e M. Cherubini

14.00 – 14.30 L’esperienza assistenziale con gli adulti – B. Borchi

14.30 – 15.00 L’adulto e le scelte difficili della procreazione – P. Catastini

15.00 – 15.30 L’associazionismo e la “rete” toscana tra assistenza e ricerca – F. Berti

16.00 – 16.45 Discussione e conclusioni

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